20 January 2019

Organ Trafficking

Last month's Compassion, Not Commerce: An Inquiry into Human Organ Trafficking and Organ Transplant Tourism by the Human Rights Sub-Committee of the Joint Standing Committee on Foreign Affairs, Defence and Trade comments
Organ trafficking, the unethical removal, transfer or commercialisation of human organs for transplantation outside legal frameworks poses severe risks for both organ recipients and donors. It is an illicit trade that changes over time with developments in transplantation surgery techniques, the availability of medical infrastructure, uneven economic development, migration patterns, demographic trends, socio-economic exclusion, and the evolution of national multinational criminal networks. .... The organ trade has evolved and continues to evolve under the influence of forces of demand and supply as well as changes in national and international regulation and law enforcement. Judgements made about the extent and geographical focus of organ trafficking and transplant tourism a decade or more ago may have limited validity in relation to present trends and circumstances, and this report demonstrates that without the collection of accurate data, solutions will be difficult to create. This report examines the global prevalence of human organ trafficking and the scope of Australian participation within this illicit trade. The report further considers international frameworks to combat organ trafficking and organ transplant tourism and specifically recommends that Australia sign and ratify the Council of Europe Convention against Trafficking in Human Organs. The report further recommends that the Australian Government pursue a range of measures to strengthen Australia’s involvement in international efforts to combat human organ trafficking, improve relevant data collection, support public health education programs, strengthen Australia’s legal prohibitions on organ trafficking, and thoroughly investigate reforms that would enhance Australia’s domestic organ donation program. ix With regard to the last issue it should be noted that surveys show the majority of Australians – 69 per cent - are willing to donate their organs and/or tissue when they die. In Australia, 90 per cent of families say yes to donation when their loved one is a registered donor. Despite this apparent support for organ donation, and a majority of Australians believing that registering is important, only one in three Australians are registered as donors. While 71 per cent of Australians think it is important to talk about organ donation with their family, only half – 51 per cent -of Australians have held this discussion about whether they want to be a donor with their loved ones. This report largely deals with measures that are aimed at suppressing human organ trafficking and transplant tourism.
The Subcommittee's  recommendations are
Organ trafficking and organ transplant tourism in the global context 
Recommendation 1 The Sub-Committee recommends that the Australian Government pursue through the United Nations the establishment of a Commission of inquiry to thoroughly investigate organ trafficking in countries where it is alleged to occur on a large scale. 
Recommendation 2 Given the contention and ongoing debate around transplant practices in China, the Sub-Committee recommends that the Australian Government:  monitor the transplantation practices of other countries with regard to consistency with human rights obligations, including with regard to the use of the organs of executed prisoners;  seek the resumption of human rights dialogues with China;  continue to express concern to China regarding allegations of organ trafficking in that country; and  offer to assist with the further progression of ethical reforms to the Chinese organ matching and transplantation system. 
Australian involvement in organ trafficking and transplant tourism 
Recommendation 3 The Sub-Committee recommends that the Australian Government meets international best practice standards by establishing a comprehensive organ donation data collection repository, based possibly on the ANZDATA model, but comprising a single point of access to data regarding all organ transplantations in Australia, including outcomes of treatment, deaths, travel overseas for treatment, cross referencing against waiting lists and other relevant information. 
Recommendation 4 The Sub-Committee recommends that the Australian Government ensures that suitably-anonymised data regarding the participation by Australians in overseas commercial transplants, or those involved in organ procured from a non-consenting donor overseas, be shared with appropriate international partners, in order to combat transnational organ trafficking through cross-jurisdictional intelligence sharing. 
Recommendation 5 The Sub-Committee recommends that the Australian Government works with the States and Territories, transplant registries, and the medical community, to consider the appropriate parameters, protections, and other considerations, to support a mandatory reporting scheme whereby medical professionals have an obligation to report, to an appropriate registry or authority, any knowledge or reasonable suspicion that a person under their care has received a commercial transplant or one sourced from a non-consenting donor, be that in Australia or overseas.  
International frameworks to combat organ trafficking and organ transplant tourism 
Recommendation 6 The Sub-Committee recommends that the Australian Government sign and ratify the Council of Europe Convention against Trafficking in Human Organs, and works with the States and Territories to make the requisite amendments to Commonwealth and State and Territory legislation and ensure non-legislative obligations are met. 
Australian legal and policy issues 
Recommendation 7 The Sub-Committee recommends that the Australian Government amend the Criminal Code Act 1995 and any other relevant legislation insofar as offences relating to organ trafficking:
  • include trafficking in human organs, including the solicitation of a commercial organ transplant; 
  • apply to any Australian citizen, resident or body corporate; 
  • apply regardless of whether the proscribed conduct occurred either within or outside of the territory of Australia; 
  • apply regardless of the nationality or residence of the victim; and 
  • apply regardless of the existence, or lack thereof, of equivalent laws in the jurisdiction in which the offending conduct occurred. 
Recommendation 8 The Sub-Committee recommends that the Australian Government establishes a multi-lingual public health education program that:
  • addresses the legal, ethical and medical risks associated with participation in organ transplant tourism; 
  • includes a stream for educating frontline staff such as medical professionals about how to best identify possible cases of organ harvesting and support both vulnerable victims and desperate patients, based possibly on the Anti-Slavery Australia e-learning model; 
  • is multi-lingual; and 
  • is designed in particular to educate Australians who were born in, or have family associations in, countries where human organ trafficking is known or suspected to occur. 
Recommendation 9 The Sub-Committee recommends that the Australian Government includes information on trafficking in human organs and transplant tourism on relevant government websites, including on the SmartTraveller.gov.au website, on country-specific pages of countries where human organ trafficking is known or suspected to occur. 
Recommendation 10 The Sub-Committee recommends that the Australian Government
  • work with medical professionals, and other relevant stakeholders, to examine the impact of non-specialist prescribing of immunosuppressant medication on the efficacy of post-operative care and; 
  • examine ways to implement capture of data relating to the prescribing of immunosuppressant medication including that relating to transplants occurring overseas. 
Recommendation 11 The Sub-Committee recommends that the Australian Government seeks to improve organ donation rates through a number of approaches including:
  • consultation with the relevant agencies, continue the promotion of organ donation including education and awareness campaigns. 
  • ongoing funding of the Supporting Leave for Living Organ Donors program and the Australian Paired Kidney Exchange Program (AKX). 
  • further investigation of other countries donation programs, including Opt-Out organ donation programs to determine whether such a program could be appropriate for the Australian health system. 
Case study on alleged human tissue trafficking 
Recommendation 12 The Sub-Committee recommends that the Australian Government works with the States and Territories, as a matter of priority, to ensure that any person or body corporate importing human tissue into Australia for commercial purposes produces verifiable documentation of the consent of the donor person or their next-of-kin. This could include appropriate legislative changes at the Commonwealth or State and Territory level where required.
The report states
 On the 21 June 2017 the Human Rights Sub-Committee was tasked by the Joint Standing Committee on Foreign Affairs, Defence and Trade, to undertake an inquiry into the organ trafficking and transplant tourism. 
The terms of reference required the Sub-Committee to examine this broad issue including what Australia is doing to prevent and deter the practice of organ trafficking and transplant tourism both in Australia and overseas. In addition the Sub-Committee was asked to consider, whether it would be desirable or practical for Australia to accede to the 2014 Council of Europe Convention against Trafficking in human organs. 
Definitions 
There are a number of key terms relating to organ trafficking and transplant tourism relevant to this inquiry. This section outlines definitions for each of these terms, as they will be used within this report. 
Organ trafficking 
‘Organ trafficking’ encompasses two related types of activity: trafficking in human organs; and the trafficking of persons for the purpose of organ removal.1 ‘Trafficking in human organs’ refers to the unethical or illegal removal, transference or commercialisation of human organs, outside of  the governance system of the relevant jurisdiction. Where trafficking in human organs is a crime, the object of that crime is the organ.  The Australian Government considers ‘trafficking in human organs’ to mean: …the illicit trafficking in human organs, tissues or cells obtained from living or deceased donors and transacted outside the legal national system for organ transplantation. 
‘Trafficking of persons for the purpose of organ removal’ refers to the recruitment of a person, transportation of a person, or transference of a person to the control of another person, for the purpose of removal of an organ, outside of the governance system of the relevant jurisdiction. Where the trafficking of persons for the purpose of organ removal is a crime, the object of that crime is the trafficked person. 
It is important to note that organ recipients or donors may travel internationally legitimately, outside of commercial arrangements. For example, a recipient may travel to another country were a relative is a tissue match and has volunteered to donate kidney or a partial liver without any commercial transaction having taken place. 
Organ trafficking is defined in several international instruments. These instruments will be discussed in detail in chapter 4 of this report. The United Nations Protocol to Prevent, Suppress and Punish Trafficking in Persons Especially Women and Children supplementing the United Nations Convention against Transnational Organized Crime (the Palermo Protocol which is discussed further in Chapter 4) defines organ trafficking in the context of the broader prohibition on trafficking in persons, defining ‘trafficking in persons’ as: …the recruitment, transportation, transfer, harbouring or receipt of persons, by means of the threat or use of force or other forms of coercion, of abduction, of fraud, of deception, of the abuse of power or of a position of vulnerability or of the giving or receiving of payments or benefits to achieve the consent of a person having control over another person, for the purpose of exploitation. Exploitation shall include…the removal of organs…the consent of a victim…shall be irrelevant… 
The Council of Europe Convention against Trafficking in Human Organs (the Council of Europe Convention, this is discussed further in Chapter 4) was  established in part in response to a definitional gap in the Palermo Protocol identified by a joint United Nations and the Council of Europe study. The joint study established that the Palermo Protocol addressed only trafficking of persons for the purpose of organ removal, without consideration as to trafficking in human organs themselves. The Council of Europe Convention sought to address this gap, defining ‘trafficking in organs’ as the “illicit removal of human organs…without the free, informed and specific consent of the living or deceased donor” or where a “donor, or a third party, has been offered or has received a financial gain or comparable advantage” or the “transportation, transfer, receipt, import [or] export” of organs removed under these circumstances. 
The Declaration of Istanbul on Organ Trafficking and Transplant Tourism (the Declaration of Istanbul, this is discussed further in Chapter 4) is a set of principles and proposals towards the prevention of organ trafficking, developed by representatives of international scientific and medical bodies. Agreed at a gathering convened by the Transplant Society and the International Society of Nephrology, the declaration defines organ trafficking as: …the recruitment, transport, transfer, harbouring or receipt of living or deceased persons or their organs by means of the threat or use of force or other forms of coercion, of abduction, of fraud, of deception, of the abuse of power or of a position of vulnerability, or of the giving to, or the receiving by, a third party of payments or benefits to achieve the transfer of control over the potential donor, for the purpose of exploitation by the removal of organs for transplantation. 
Organ transplant tourism 
The term ‘organ transplant tourism’ refers to the cross-border travel of a person to facilitate an organ transplant. While there is no legal definition of transplant tourism under Australian law, the Australian Government considers the term to mean: …a prospective organ recipient voluntarily travelling to a foreign country for the purpose of undergoing organ transplantation. The organ may be acquired through legal, illegal or unethical means, including without the full and free consent of the donor. 
The World Health Organization (WHO) and the Declaration of Istanbul provide a shared definition, considering transplant tourism to be a subset of ‘travel for transplantation’: Travel for transplantation is the movement of organs, donors, recipients or transplant professionals across jurisdictional borders for transplantation purposes. Travel for transplantation becomes transplant tourism if it involves organ trafficking and/or transplant commercialism or if the resources (organs, professionals and transplant centers) devoted to providing transplants to patients from outside a country undermine the country’s ability to provide transplant services for its own population. 
The Law Council of Australia notes that while the WHO/Declaration of Istanbul definition is not binding, it is “internationally accepted and hence instructive.”10 The importance of the WHO/Declaration of Istanbul definition, as the basis of a common framework between international standards bodies and the international medical community, is highlighted by the United Nations, which has noted that the previous lack of an agreed definition “made it more difficult to understand and analyse the problem and its extent, and eventually to take appropriate countermeasures at the national, regional and international levels.” 
Origins and conduct of the inquiry 
The inquiry of the Joint Standing Committee on Foreign Affairs, Defence and Trade, Human Rights Sub-Committee into Human Organ Trafficking and Organ Transplant Tourism arose from a series of private briefings. 
The Human Rights Sub-Committee was approached by the Falun Dafa Association of Australia who provided a private briefing together with authors David Matas and David Kilgour on 22 November 2016 regarding the alleged ‘harvesting of organs’ sourced from political prisoners, prisoners of conscience, and those sentenced to execution by China. 
Kilgour, Matas along with fellow author Ethan Gutman had published an update to an earlier account of the alleged trafficking of organs in China entitled: Bloody Harvest/The Slaughter - An Update. This publication examines information concerning the transplant programs of hundreds of   hospitals in China and claims that the Chinese government has been performing 60,000 to 100,000 transplants per year since the year 2000 (as opposed to the official Chinese claim of approximately 10,000 per year) and the primary source for transplanted organs were imprisoned Falun Dafa practitioners. 
It is outside the capacity of the Sub-Committee to prove or disprove these allegations. However given the importance of this issue, the SubCommittee wished to establish how extensive the practice of organ trafficking may be with regard to Australian and what Australia might do to combat the illicit sale and purchase of human organs. 
A briefing was requested from the Department of Health, the Department of Foreign Affairs, and the Attorney-General’s Department to discuss organ trafficking predominantly from an Australian perspective. 
The Sub-Committee also held a private briefing involving academics specialising in organ transplant medicine and international organ trafficking on the 9 May 2017 which was interrupted by business in the Parliament on the day. Witness were invited back on the 13 June 2018 to complete this briefing. These witnesses discussed the extent of organ trafficking participated in by Australians, allegations brought by the Falun Dafa Association against China, and the issue of organ transplant trafficking and tourism more broadly. 
The Sub-Committee was concerned with the allegations raised by the Falun Dafa Association and by the apparent growth in this trade worldwide. The Sub-Committee wished to ascertain if Australian measures to deter and prevent organ trafficking in Australia and by Australians have kept pace with this growing trade. 
...  The Committee referred the inquiry to the Human Rights Sub-Committee to undertake with the following terms of reference:
The Committee will have regard to the offence of Organ Trafficking under division 271 of the Criminal Code and whether it would be practicable or desirable for:
  • this offence to have extraterritorial application; and 
  • Australia to accede to the 2014 Council of Europe Convention against Trafficking in Human Organs.15 
Outline of report 
Chapter 2 assesses the global prevalence of organ trafficking, international legal frameworks and the risks of organ transplant tourism for donors and recipients. 
Chapter 3 examines the scope of Australian participation in organ trafficking and transplant tourism and the adequacy of the data available on organ trafficking by Australians. 
Chapter 4 examines international frameworks to combat organ trafficking and organ transplant tourism and considers the question of whether Australia should sign and ratify the European Convention against Trafficking in Human Organs. 
Chapter 5 examines the current Australian legal framework relating to participation in organ trafficking, and considers whether or to what degree extraterritorial jurisdiction should be extended. 
Chapter 6 examines as a case study of alleged human tissue trafficking, the issues relating to the Real Bodies commercial anatomical exhibition on display in Australia during the course of this inquiry